Coastal Empire Polio Survivors Association, Inc. Georgia (912) 355-1221 ● South Carolina (843) 837-1230 ●
http://www.coastalempirepoliosurvivors.org Shining Light on Post-Polio Health Polio may be forgotten… but “WE’RE STILL HERE!” Coastal Empire Polio Survivors Association, Inc. (CEPSA) is a 501(c)3 non-profit organization that has been helping polio survivors since 1997 face the unexpected and often disabling symptoms of “The Late Effects of Polio,” Post-Polio Syndrome (PPS). The most common Post-Polio Syndrome symptoms that develop 30 to 40 years after the initial poliovirus attack are chronic fatigue, new muscle weakness, joint and muscle pain, muscle cramps and twitching, sleeping problems, breathing and swallowing difficulties and a heightened sensitivity to anesthesia, pain and hot and cold temperatures. There are approximately 1.6 million Americans still alive today, who had polio during the epidemic years of the 40′s, 50′s and early 60′s. According to the International Post-Polio Task Force, 75% of paralytic polio survivors and 40% of non-paralytic will experience some form of PPS. Some polio survivors still are not aware that PPS exists therefore; many are at risk of being misdiagnosed or prescribed medications that increase Post-Polio Syndrome symptoms. The need for our organization continues to grow, as more and more polio survivors find themselves confronting PPS and requiring specialized health care, accessible equipment and braces, crutches, canes or walkers. CEPSA strives to locate polio survivors to offer support, assistance and vital PPS information through our monthly meetings and newsletters. CEPSA currently has over 100 members living in Georgia and South Carolina who are experiencing Post-Polio Syndrome. We mail and e-mail approximately 150 monthly newsletters to polio survivors, sponsors and other interested individuals all over the Southeast. Through grants and fund raising, CEPSA provides members in need with used scooters or motorized wheelchairs, braces, and accessible equipment not covered by Medicare, such as vehicle scooter lifts. As our health deteriorates, our needs will expand to more extensive requirements such as home modifications, which is also not covered by Medicare. CEPSA was awarded the Dan Vaden Chevrolet Cadillac “GOING THE EXTRA MILE” award on February 15, 2012 for outstanding community service by literally “Going the Extra Mile” in scooters and motorized wheelchairs throughout Savannah’s Historic District to map out the accessible path from Bull Street to parks and historic sites. The first publication of CEPSA’s map generated so much positive attention that the City Council allocated $400,000 to add 1,500 new curb cuts in three years. The life of CEPSA’s accessibility map ran its course from 2006-2009, until the curb cuts were completed. This contribution to greater accessibility in Savannah’s Historic District led to CEPSA collaborating with Savannah-Chatham Council on Disability Issues (SCCDI) to publish the Accessibility Guide to Savannah’s Historic District, which is available online at http://www.savannahvisit.com and Savannah’s Visitor Centers. Savannah Rotary Chapters invited CEPSA to participate in the 2012 “Rotary Conference” with our comprehensive polio awareness exhibit, featuring an original Iron Lung used during the polio epidemic years to help polio patients breathe. In addition, CEPSA collaborated with five Rotary Clubs in South Carolina 2009-2011 in the “END POLIO NOW” worldwide polio eradication efforts by helping to raise funds and participating in the “Heel-to-Toe for Polio” walk in Hilton Head, S.C. using our scooters and motorized wheelchairs. CEPSA received a grant from Sunset Rotary in South Carolina in 2011 to help with needed scooters, motorized wheelchairs, lifts, batteries and repairs. The members of CEPSA are looking forward to other opportunities to work with Rotary Clubs in the Low Country and surrounding areas. If we can help you or your Rotary Club with a Post-Polio project, please e-mail Janet DiClaudio at jdcprn@aol.com. Polio Survivors Everywhere are Declaring, “WE’RE STILL HERE!”






